The Still Point of the Turning World

Like all mothers, Emily Rapp had ambitious plans for her first and only child, Ronan.  He would be smart, loyal, physically fearless, and level-headed, but fun.  He would be good at crossword puzzles like his father.  He would be an avid skier like his mother.  Rapp would speak to him in foreign languages and give him the best education. But all of these plans changed when Ronan was diagnosed at nine months old with Tay-Sachs disease, a rare and always-fatal degenerative diso