Mercies in Disguise

A science reporter’s account of a family, a genetic illness, and one courageous daughter who decides her fate shall no longer be decided by a genetic flaw. “A moving, suspenseful page-turner . . . Recalls two other classic tales of medical anthropology, Rebbeca Skloot’s The Immortal Life of Henrietta Lacks and Anne Fadiman’s The Spirit Catches You and You Fall Down .” — The Washington Post The phone rings; the doctor has the results. “Are you ready, Amanda?” The two people Amanda Baxley loves th