Hope for a Sea Change

When her three-month-old daughter Sophie is diagnosed with a rare seizure disorder, Elizabeth Aquino and her husband, Michael, are thrust into a nightmarish world of impossible decisions, toxic drug cocktails, and talk of brain surgery on their tiny child. As they grapple with the harrowing progression of their child’s seizures, they grow to understand that the doctors know little more about how to heal Sophie than they do. They are in a terrifying no-man’s-land. This narrative of unintended med